Megan Donnell founded the Sanfilippo Children’s Foundation in late 2013. To date over $3m has been invested into 12 medical research projects in to the rare and fatal genetic childhood disease, Sanfilippo Syndrome including a pioneering gene therapy treatment that is currently in clinical trial here in Australia. Megan is inspired every day by her children, Isla and Jude, who both suffer from the condition.
Humans are taking evolution into our own hands – but should we? Sit back as a panel of experts open the pandora's box of human gene editing, asking the big questions in an accessible way. What are designer babies? Should we create them? What are the social, political and ethical minefields? And who's going to be able to afford this anyway?